Partnering with patients and families in decision-making for care, research, and education is a key component of delivering high quality care. To ensure high quality care is delivered, it is essential that these decisions are informed by high quality and relevant evidence. When it comes to children cared for on general paediatric wards in Canada, who represent one-quarter of all hospitalized children, there are key evidence gaps to inform high quality care. The Canadian Paediatric Inpatient Research Network (PIRN) was launched to improve care and outcomes for hospitalized children by collaborating with patients and families to identify the most important priorities to conduct research on for children in hospital.
In this webinar, Dr. Gill and Dr. Buchanan will describe how they created partnerships with patients, families, and clinicians from across Canada to identify a Top 10 list of priorities and describe the key values and benefits of family engagement in research, and how this input identified key areas to improve care. They will share patient engagement resources to help others collaborate and partner with patients and families and provide a road map for regional health authorities, children's tertiary/quaternary and rehabilitation hospitals, and community hospitals to enable local improvements and system-wide change. This presentation reflects a national project that includes 17 children’s hospitals and several large community hospitals to identify the most important areas of research for children in hospital.